HB 101. Should be finished here about 11.15 today.
Christine my surgeon wants a nuclear scan of my parathyroid (MIBI scan) to confirm if its overactive. When I’m eventually cremated my ashes will fricken glow. Ull see them from the moon I’m sure.
I have no symptoms from my high blood calcium levels and it is a trait of stem cell transplantees of calcium levels to be out of whack. I am confident my body is dealing with it the best way it knows how, so as long as there is no tumor attached I will be pushing for them to leave it be. I feel like yelling ‘STOP LOOKING FOR SHIT’
Im not keen on it being removed because that causes a whole set if problems relating to no calcium and osteoporsis which Vy doesn’t think calcium tablets would be sufficient to combat anyway, and too much calcium can be managed more easily. So we both agree, removing would be last option. We also both believe it is just my normal.
On another note, my husband told me the other day, after I was complaining of no hair “you are no prettier with hair”. I think that’s the most beautiful thing anyone has ever said to me. I love you Todd XXX
Happy days xx
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Published by Debra Mesecke
I was 21 and I was planning a wedding, buying a house and had a job interview for the job of my dreams on my 22nd birthday. You see I was being made redundant and had to find a new job by August. Especially with the new mortgage now. It was April. I worked for CML and my new job was a done deal. All I needed was a medical. And with that, just like that....my life was turned upside down and I was diagnosed with CML, ha ha, I know the irony. My hematologist had a laugh at that too. I had Chronic Myeloid Leukeamia, which was normally reserved for 70 year old men. Quite rare for a young adult to get, so how would they treat it? I underwent two separate trials until finally it was decided my best chance of survival (all be it only 50% chance), would be a MUD BMT (matched unrelated bone marrow transplant), now known as VUD Allograt (volunteer unrelated donor). I was told 21 years ago the chance of finding a match was 1 in 20,000 (and that is everyone was on the bone marrow donor registry). Scary odds. So being the risk taker I am I said "go for it". They found a match and that was my first miracle in this journey. The second miracle was, it worked - new blood type, two different DNA profiles and the miracle of medicine was reborn inside me. The third miracle is my son.
25 years on, I now face a new challenge. Breast Cancer. Certainly not the first person to have cancer, to have invasive ductile cancer, hormone receptive and HER2 +, or to even have a dual diagnosis. But this is not another Webiste about a cancer survivor, this is just my excuse to finally publicly write. Along the way I am hoping I can share some insights I have learnt over the years and at the same time, give you a good belly laugh.
View all posts by Debra Mesecke
He’s a keeper your husband 🙂 And he knows a good thing when he has it. xxxx
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